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Lyme Disease Awareness Month 2015

03/06/2015
May is over so that means that Lyme Disease Awareness Month is too. I want to say thank you to everyone who participated in the giveaway and those of you who went out of their way to do Lyme Awareness Nails. Please go and check the hashtag #lymeawarenessnails on instagram as there are some amazing designs from lovely people who deserve recognition for their work. I really hope that many people have found out about Lyme Disease and now know prevention, symptoms and the controversy around testing and treatment. I have shared a lot of information this month on my instagram @alintamcmurdo, which I hope you have all read. Please share your knowledge about this disease and lets pressure the Aus government to recognise and treat it. 
Source – Lyme Stats
I also shared information in my Lyme Disease Awareness Nail Polish Giveaway post, but there is one thing I think I have missed information wise. When I talk about some symptoms like fatigue and pain, they’re not the sort of fatigue and pain you feel after running a marathon. The fatigue is unrelenting, you are constantly out of it as your brain doesn’t have the energy to work well, and no amount of sleep helps this. The pain is widespread and isn’t relieved by any form of medication. The pain can be in the bones, joints, muscles and skin. It migrates around and can feel like a dull ache, stabbing pains or burning sensations. When I was healthy I wouldn’t have even been able to imagine the suffering that these two symptoms alone cause. Some symptoms seem like they can be worked around but when you look closer, even the most simple of symptoms still cause a lot of difficulty. When it comes to memory issues, it is easy enough to write a list when you know you have to remember something, but there’s nothing you can do when needing to remember a book, movie, memory or previous conversation with someone. 
Source – Lyme Stats

It’s so easy to forget just how bad certain symptoms can get. I always fall into the habit of doubting just how bad my suffering was at a certain point in life, but when the symptom comes back with avengence, I am reminded of just how bad it can get. If even I can doubt the suffering that this disease causes, then I can’t be angry at those of you who question the severity of Late Stage Neurological Lyme Disease. Some doctors have compared Lyme Disease to Cancer, Heart Disease and HIV/AIDS, and have come to the conclusion that a Lyme patients suffering is the greatest. I even have a quote from a Doctor who treats both HIV and Lyme Disease patients “Most of my HIV patients used to die … now most don’t … Some still do, of course. My Lyme patients, the sickest ones, want to die but they can’t. That’s right, they want to die but they can’t. The most common cause of death in Lyme disease is suicide. In the current day, if one compares HIV/AIDS to Lyme Borreliosis Complex patients in issues of 1) access to care, 2) current level of science, and 3) the levels of acceptance by doctors and the public, patients suffering with advanced Lyme Borreliosis Complex have an inferior quality of life compared to those with HIV/AIDS in NC. This statement may seem heretical to some of you, I’m sure. But I can say this with authority — and I am really the only one in this room today who has the intellectual and experiential authority to do that.” I hope that helps you understand more about the severity of this disease in its late stages. You can also read my A Day In The Life Of Lyme post if you want to know more about my life specifically.

Source – Lyme Stats

Don’t forget though, that Lyme Disease, especially the debilitating late stage, can be prevented by wearing long sleeves when in tick areas. If you do get bitten by a tick, early diagnosis and treatment are so important. Late Stage Lyme Disease is preventable, this suffering is preventable, but the information about Lyme Disease needs to be out there. Whilst the government denies its existence, it is up to us to spread the word about Lyme Disease – we can save lives by doing this.

Souce – Lyme Disease Posters

Again, thank you to those of you who have participated, it means the absolute world to me. The random winners of the giveaway are @chips7648 and @mrs.miscostello. Congratulations! I will message you both now and you will have 48 hours to reply or I will redraw new winners. I will be back next year with another great Lyme Disease Awareness giveaway. I hope that something has changed by then, but if not, then the fight will go on.

Love, Alinta

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I’m Alinta, an animal lover who writes reviews about cruelty free products as a distraction from my chronic illnesses. Read more…

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  • It’s been 6.5 weeks since my first Pfizer vaccination and 3.5 since my second, but I still feel like death warmed up. This isn’t surprising. My immunologist, GP and I all knew I would suffer, but that doesn’t make it easier to deal with. This isn’t a covid vaccine specific reaction, I react to all vaccines in the same way. I was out of action for 2 weeks after my meningococcal vaccine last December and most people don’t have any problems with that vax. My vaccine reactions are specific to only me, because of my unique immune deficiencies. My immunologist has never come across anyone else with the combination of immune deficiencies that I have. Unfortunately, one of my worse deficiencies is that of Memory B Cells, which means I don’t make immunity to many vaccines, and when I do, it doesn’t last for long. I still get vaccinated despite this, because it matters. So the point of this post - please get your covid vaccination when you are eligible to. Many vulnerable people like myself are relying on herd immunity and we’re just not going to get there if everyone doesn’t do their part. I didn’t get a pretty sticker but the potential of covid antibodies is better than any sticker. 
Pic description: selfie of me in a mask with neon yellow sticker that says I have had the covid-19 vaccine, taken just after my second vaccination.
    It’s been 6.5 weeks since my first Pfizer vaccination and 3.5 since my second, but I still feel like death warmed up. This isn’t surprising. My immunologist, GP and I all knew I would suffer, but that doesn’t make it easier to deal with. This isn’t a covid vaccine specific reaction, I react to all vaccines in the same way. I was out of action for 2 weeks after my meningococcal vaccine last December and most people don’t have any problems with that vax. My vaccine reactions are specific to only me, because of my unique immune deficiencies. My immunologist has never come across anyone else with the combination of immune deficiencies that I have. Unfortunately, one of my worse deficiencies is that of Memory B Cells, which means I don’t make immunity to many vaccines, and when I do, it doesn’t last for long. I still get vaccinated despite this, because it matters. So the point of this post - please get your covid vaccination when you are eligible to. Many vulnerable people like myself are relying on herd immunity and we’re just not going to get there if everyone doesn’t do their part. I didn’t get a pretty sticker but the potential of covid antibodies is better than any sticker. Pic description: selfie of me in a mask with neon yellow sticker that says I have had the covid-19 vaccine, taken just after my second vaccination.
    2 months ago
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    1/10
  • I think I’ve made it pretty obvious that I care about Indigenous rights as well as the environment. So I am particularly interested in how Indigenous people want to combat climate change because climate change action desperately needs to be decolonised. 
Unfortunately, those who are the least responsible for climate change are the ones who ones who will suffer the most, and many Indigenous people will be more vulnerable to the impacts of climate change because of colonisation. Indigenous people and their knowledge are frequently left out of climate discussions and that needs to change. My climate change uni subject focuses on exactly that this week. 
For a long time I’ve wanted to post about this sort of thing but I haven’t known where to start. I have no idea where the level of environmental and climate knowledge is at with the general public so I would love if you could let me know how much you know about it. Then at least I have a place to start. 
Also, thanks for sticking by me, it has been very hard to get through this subject whilst going through all my health stuff plus vaccines. I have my second vax on Thursday and a few more weeks of uni and then I’ll be around more often. 
Oh and don’t forget to show up to the climate strike on Friday 😊
Pic description - white lined notebook on black background with handwriting that says First Nations People’s and Earth Based Governance. 
#climatechange #alwayswasalwayswillbe #lovealinta
    I think I’ve made it pretty obvious that I care about Indigenous rights as well as the environment. So I am particularly interested in how Indigenous people want to combat climate change because climate change action desperately needs to be decolonised. Unfortunately, those who are the least responsible for climate change are the ones who ones who will suffer the most, and many Indigenous people will be more vulnerable to the impacts of climate change because of colonisation. Indigenous people and their knowledge are frequently left out of climate discussions and that needs to change. My climate change uni subject focuses on exactly that this week. For a long time I’ve wanted to post about this sort of thing but I haven’t known where to start. I have no idea where the level of environmental and climate knowledge is at with the general public so I would love if you could let me know how much you know about it. Then at least I have a place to start. Also, thanks for sticking by me, it has been very hard to get through this subject whilst going through all my health stuff plus vaccines. I have my second vax on Thursday and a few more weeks of uni and then I’ll be around more often. Oh and don’t forget to show up to the climate strike on Friday 😊 Pic description - white lined notebook on black background with handwriting that says First Nations People’s and Earth Based Governance. #climatechange #alwayswasalwayswillbe #lovealinta
    3 months ago
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    1/10
  • Here are the ring details as promised. I think you all knew that my ring was going to be ethical in some way. It wouldn’t be me otherwise, would it? I’ve followed @ethicaljewelleryaustralia for years now, so I’ve known for a long time that I would want them to make a ring for me. It’s something that I will be wearing everyday, so I want it to represent my values. So the ring is handmade by #EthicalJewelleryAustralia in the design I wanted. It’s a round diamond with a four prongs that look like little petals. It’s made with recycled platinum and a lab diamond. Diamond and metal mining have a lot of negative social and environmental impacts, plus a lab diamond is far more affordable than a traditionally mined diamond, which means you can reduce your impact on people, the planet and your hip pocket. I hope lab grown diamonds are the choice of the future, as it is far better for human rights and the environment to make a diamond in a lab using renewable energy, than it is to mine them from the ground, using fossil fuels and unethical labor - just look into blood diamonds if you want to know how bad it can get. I also plan on trying to have a more ethical wedding too. I’ve already found a carbon neutral venue, but I’ve got lots of research to do on everything else. Let me know if you have any ideas for a sustainable wedding. 
Picture description: fair hand flat out with fingers spread showing silver coloured ring on ring finger with a green background. 
#ethicalengagementring #ethicalengagement #labdiamond #recycledplatinum #lovealinta
    Here are the ring details as promised. I think you all knew that my ring was going to be ethical in some way. It wouldn’t be me otherwise, would it? I’ve followed @ethicaljewelleryaustralia for years now, so I’ve known for a long time that I would want them to make a ring for me. It’s something that I will be wearing everyday, so I want it to represent my values. So the ring is handmade by #EthicalJewelleryAustralia in the design I wanted. It’s a round diamond with a four prongs that look like little petals. It’s made with recycled platinum and a lab diamond. Diamond and metal mining have a lot of negative social and environmental impacts, plus a lab diamond is far more affordable than a traditionally mined diamond, which means you can reduce your impact on people, the planet and your hip pocket. I hope lab grown diamonds are the choice of the future, as it is far better for human rights and the environment to make a diamond in a lab using renewable energy, than it is to mine them from the ground, using fossil fuels and unethical labor - just look into blood diamonds if you want to know how bad it can get. I also plan on trying to have a more ethical wedding too. I’ve already found a carbon neutral venue, but I’ve got lots of research to do on everything else. Let me know if you have any ideas for a sustainable wedding. Picture description: fair hand flat out with fingers spread showing silver coloured ring on ring finger with a green background. #ethicalengagementring #ethicalengagement #labdiamond #recycledplatinum #lovealinta
    3 months ago
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    1/10
  • With it being #EarthDay, I thought I would share some on my sustainable cleaning products. Everyone has to clean, but supermarket cleaning products don’t tend to be very eco-friendly. Here I’ve got my @ecomaxbrushes Bottle brush which is made from coconut waste products and can be composted at the end of its life - it will just leave the wire which can be recycled. There’s my Safix biodegradable scrub pad made from organic coconut fibers which can be composted when you are finished with it. And @retrokitchenaustralia biodegradable dish cloth in a cute dog print. It’s made from cotton and cellulose and can be composted when worn out. I use them with the @koalaeco Natural Multipurpose Kitchen Cleaner which is cruelty free, vegan and palm oil free and comes in 100% post consumer recycled bottles that can be recyclable when finished. I get the big refill bottles and just fill up my spray bottle. I bought all the above from @floraandfaunaau and they’re actually having 15% off eco items today, so all of these are discounted. Don’t forget to use my #floraandfaunaau affiliate code on my blog if you ever make a purchase, it helps me out. There’s lots of other ways to make regular household chores better for the environment. It can feel overwhelming to charge, but just start with small steps. When one product runs out you can replace it with a more sustainable option. One of the last things I need to change is is my laundry detergent so I’m thinking I’ll try @thedirtcompany one. I would love to hear what you think of their products if you’ve tried them. Also let know what eco swaps you’ve made in your home so that I can get more ideas. #EcoSwaps #LoveAlinta
    With it being #EarthDay, I thought I would share some on my sustainable cleaning products. Everyone has to clean, but supermarket cleaning products don’t tend to be very eco-friendly. Here I’ve got my @ecomaxbrushes Bottle brush which is made from coconut waste products and can be composted at the end of its life - it will just leave the wire which can be recycled. There’s my Safix biodegradable scrub pad made from organic coconut fibers which can be composted when you are finished with it. And @retrokitchenaustralia biodegradable dish cloth in a cute dog print. It’s made from cotton and cellulose and can be composted when worn out. I use them with the @koalaeco Natural Multipurpose Kitchen Cleaner which is cruelty free, vegan and palm oil free and comes in 100% post consumer recycled bottles that can be recyclable when finished. I get the big refill bottles and just fill up my spray bottle. I bought all the above from @floraandfaunaau and they’re actually having 15% off eco items today, so all of these are discounted. Don’t forget to use my #floraandfaunaau affiliate code on my blog if you ever make a purchase, it helps me out. There’s lots of other ways to make regular household chores better for the environment. It can feel overwhelming to charge, but just start with small steps. When one product runs out you can replace it with a more sustainable option. One of the last things I need to change is is my laundry detergent so I’m thinking I’ll try @thedirtcompany one. I would love to hear what you think of their products if you’ve tried them. Also let know what eco swaps you’ve made in your home so that I can get more ideas. #EcoSwaps #LoveAlinta
    3 months ago
    View on Instagram |
    1/10
  • I have some news. I’m engaged! As a kid/teen I never thought this would happen as I didn’t believe in love - then I got sick and worried that no one would see past my illnesses. But I have found someone who loves me for me, faults, illnesses and all and I can’t wait to marry him. 
We spent yesterday afternoon attempting to take our own engagement photos in the yard with a tripod and this is the result. Having a photographer would be so much easier but my immune system wouldn’t appreciate that. 
Oh and I’ll tell you all about my ring in another post as I designed it ☺️#engagedtomybestfriend #lovealinta

Photo 1 description: close up of the torsos of two people in dark colours standing side by side with arms stretched to the ground and holding hands. One hand over both arms showing silver coloured ring. 
Photo 2 description: man hugging female from behind with his arm around her chest. Her hands are on his arm showing ring. Both smiling at camera with greenery in background.
    I have some news. I’m engaged! As a kid/teen I never thought this would happen as I didn’t believe in love - then I got sick and worried that no one would see past my illnesses. But I have found someone who loves me for me, faults, illnesses and all and I can’t wait to marry him. We spent yesterday afternoon attempting to take our own engagement photos in the yard with a tripod and this is the result. Having a photographer would be so much easier but my immune system wouldn’t appreciate that. Oh and I’ll tell you all about my ring in another post as I designed it ☺️#engagedtomybestfriend #lovealinta Photo 1 description: close up of the torsos of two people in dark colours standing side by side with arms stretched to the ground and holding hands. One hand over both arms showing silver coloured ring. Photo 2 description: man hugging female from behind with his arm around her chest. Her hands are on his arm showing ring. Both smiling at camera with greenery in background.
    4 months ago
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    1/10
  • It’s been a while since I posted makeup, so here’s some makeup 🙃 the @meccamax Off Duty BB Cream made it into my 2020 faves blog post, and it’s still my favourite base to use on the rare occasion that I put makeup on. I’ve just been too tired to wear makeup the last couple of months. The #meccamax Off Duty BB Cream is cruelty free and vegan. It however only comes in 5 shades. I use the lightest shade Vanilla, which has a good undertone for me, but I have to mix it with the same amount of white concealer to make it light enough to use. @MeccaMaxima have said they will extend the shade range of their home brands for years now, but they still don’t sell a single base shade that I could use by itself, and I’m sure that’s the same for dark skin tones. The other criticism I have of this product is the packaging. The lack of pump makes it hard to control the amount that comes out, and I would really prefer if it were in glass as that would be easier to recycle. The actual cream itself is amazing though. The formula works so well on my skin. It’s easy to blend with a brush and doesn’t cake up or feel heavy. Have you tried this BB cream? Do you have another favourite cruelty free and vegan BB cream? #meccabeauty #crueltyfreebeauty #veganbeauty #lovealinta
    It’s been a while since I posted makeup, so here’s some makeup 🙃 the @meccamax Off Duty BB Cream made it into my 2020 faves blog post, and it’s still my favourite base to use on the rare occasion that I put makeup on. I’ve just been too tired to wear makeup the last couple of months. The #meccamax Off Duty BB Cream is cruelty free and vegan. It however only comes in 5 shades. I use the lightest shade Vanilla, which has a good undertone for me, but I have to mix it with the same amount of white concealer to make it light enough to use. @MeccaMaxima have said they will extend the shade range of their home brands for years now, but they still don’t sell a single base shade that I could use by itself, and I’m sure that’s the same for dark skin tones. The other criticism I have of this product is the packaging. The lack of pump makes it hard to control the amount that comes out, and I would really prefer if it were in glass as that would be easier to recycle. The actual cream itself is amazing though. The formula works so well on my skin. It’s easy to blend with a brush and doesn’t cake up or feel heavy. Have you tried this BB cream? Do you have another favourite cruelty free and vegan BB cream? #meccabeauty #crueltyfreebeauty #veganbeauty #lovealinta
    4 months ago
    View on Instagram |
    1/10
  • It has been a long week here. It’s my uni mid semester break, but it hasn’t been a break at all as I’ve spent the whole week writing things for my NDIS application. I’ve written 5000 words so far and spent far more money than I should have to to access support that I need. I’m trying to get my application in before the independent assessments start. If you don’t know, the federal government is trying to force independent assessments on people applying for or reviewing their NDIS plans. They have had a huge amount of feedback explaining how bad this will be for disabled people, but they just don’t care. Disabled people are going to go without the care that they need because this government is completely ableist. Non-disabled people really need to be speaking up about this right now, because the fed government is too ableist to listen to disabled people. Allies are really needed at times like this, so please show up. 
Picture description: Ableism is connected to all out struggles because it undergirds notions of whose bodies are considered valuable, desirable and disposable - Mia Mingus. Quote on pink and white background.
#ableism #ndis #disabilityrights #lovealinta
    It has been a long week here. It’s my uni mid semester break, but it hasn’t been a break at all as I’ve spent the whole week writing things for my NDIS application. I’ve written 5000 words so far and spent far more money than I should have to to access support that I need. I’m trying to get my application in before the independent assessments start. If you don’t know, the federal government is trying to force independent assessments on people applying for or reviewing their NDIS plans. They have had a huge amount of feedback explaining how bad this will be for disabled people, but they just don’t care. Disabled people are going to go without the care that they need because this government is completely ableist. Non-disabled people really need to be speaking up about this right now, because the fed government is too ableist to listen to disabled people. Allies are really needed at times like this, so please show up. Picture description: Ableism is connected to all out struggles because it undergirds notions of whose bodies are considered valuable, desirable and disposable - Mia Mingus. Quote on pink and white background. #ableism #ndis #disabilityrights #lovealinta
    4 months ago
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  • My chronic illness health planning blog post is up now at lovealinta.com (clickable link in bio). Managing multiple complex chronic illnesses is like having a full time job (that I don’t get paid to do), so I need all the help I can get to keep everything organised. In this picture you can see how I keep track of my appointments each month using the @chasingplannerpeace Colourful Month on Two Pages inserts and @pmdstickers. It helps with pacing to know exactly what I have coming up when, and makes sure I don’t forget to show up to any appointments. I’ve had so many appointments over the last month, plus I’m back at uni, so my body is extremely unhappy with me right now - but that’s just life when you have a long list of illnesses and specialists to go with them. Check out my blog post and let me know which inserts would help you the most with your health/medical planning. Do you have any planning tips for other chronically ill and disabled people? *press sample 
#chasingplannerpeace #pmdstickers #websterspages #chronicillnesslife #healthplanner #lovealinta
    My chronic illness health planning blog post is up now at lovealinta.com (clickable link in bio). Managing multiple complex chronic illnesses is like having a full time job (that I don’t get paid to do), so I need all the help I can get to keep everything organised. In this picture you can see how I keep track of my appointments each month using the @chasingplannerpeace Colourful Month on Two Pages inserts and @pmdstickers. It helps with pacing to know exactly what I have coming up when, and makes sure I don’t forget to show up to any appointments. I’ve had so many appointments over the last month, plus I’m back at uni, so my body is extremely unhappy with me right now - but that’s just life when you have a long list of illnesses and specialists to go with them. Check out my blog post and let me know which inserts would help you the most with your health/medical planning. Do you have any planning tips for other chronically ill and disabled people? *press sample #chasingplannerpeace #pmdstickers #websterspages #chronicillnesslife #healthplanner #lovealinta
    4 months ago
    View on Instagram |
    1/10
  • Sending my love to everyone who has had a rough couple of weeks because of what it happening in Aus politics right now. Please prioritize your self care, it’s more important than ever at the moment. By self care, I don’t just mean applying a face mask and doing nothing else. I mean finding genuine ways to reduce the anxiety and/or depression that recent events have triggered. That might mean doing mindfulness, meditation, journaling or exercise. You can also talk to your doctor about medications that can help. Taking medication is not a sign of weakness, it’s just another tool that you can use to help. Coping is different for everyone, you need to find what works for you. The thing that has helped me the most is therapy. I have been in therapy for many many many years now, but the one thing that really helped my PTSD was EMDR. There are other techniques that can be used for PTSD too. If you’re in Melbourne, the CASA house, run via the Women’s hospital offers free services specifically for survivors of sexual assault. They also run a 24 hour counseling and support line - 03 9635 3610 that you can call any time. Nationally there is the 1800Respect line - 1800 737 732, Sexual Assault Counseling Australia 1800 211 028 and Lifeline (24 hour crisis line) 131 114. If you’re thinking about calling, please do it. I now have my PTSD well controlled, but it is harder during times like these. Getting help isn’t an immediate fix but it will make life a lot easier in the long run. You deserve help, please seek it. #ptsd #lovealinta
    Sending my love to everyone who has had a rough couple of weeks because of what it happening in Aus politics right now. Please prioritize your self care, it’s more important than ever at the moment. By self care, I don’t just mean applying a face mask and doing nothing else. I mean finding genuine ways to reduce the anxiety and/or depression that recent events have triggered. That might mean doing mindfulness, meditation, journaling or exercise. You can also talk to your doctor about medications that can help. Taking medication is not a sign of weakness, it’s just another tool that you can use to help. Coping is different for everyone, you need to find what works for you. The thing that has helped me the most is therapy. I have been in therapy for many many many years now, but the one thing that really helped my PTSD was EMDR. There are other techniques that can be used for PTSD too. If you’re in Melbourne, the CASA house, run via the Women’s hospital offers free services specifically for survivors of sexual assault. They also run a 24 hour counseling and support line - 03 9635 3610 that you can call any time. Nationally there is the 1800Respect line - 1800 737 732, Sexual Assault Counseling Australia 1800 211 028 and Lifeline (24 hour crisis line) 131 114. If you’re thinking about calling, please do it. I now have my PTSD well controlled, but it is harder during times like these. Getting help isn’t an immediate fix but it will make life a lot easier in the long run. You deserve help, please seek it. #ptsd #lovealinta
    5 months ago
    View on Instagram |
    1/10

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